120 people living with down syndrome registered in Bunyoro

27 October 2025, 3:04 pm

By James Muhumuza

A total of 120 individuals living with down syndrome have been registered across Bunyoro region, including six who have since passed away, according to Ms. Mildred Katusabe, the Chief Executive Officer (CEO) of Rowan’s Down Syndrome Awareness Centre (RDSAC).

Speaking during the official launch of RDSAC in Kikuube district, Ms. Katusabe revealed that 16 individuals comprising both those living with the condition and parents of affected children have been identified within the district.

She noted that many families remain unaware of the available support systems and interventions.

The registered cases range in age from six months to 45 years.

RDSAC, a charity organisation based in the Bunyoro subegion, has already rolled out its initiatives in Hoima city, Masindi, Hoima, and Buliisa districts.

During the launch held over the weekend at Sir Tito Winyi Primary School Grounds in Kizirafumbi town council, Mr. Martin Atwebembiire, a Public Health Officer, explained that early antenatal care for expectant mothers.

He noted that timely medical checkups, including ultrasound scans, can help detect genetic abnormalities during pregnancy.

He warned that delayed response and poor access to healthcare can result in severe complications or even death, particularly among children.

Atwebembiire explained that down syndrome is a genetic condition caused by an extra chromosome during conception, which affects a child’s growth and development.

“It can be identified through developmental delays such as late speaking, walking, or sitting,” he said, adding that common physical characteristics include a short neck, long tongue, flat face, small ears, and short hands. Individuals with the condition may also experience heart defects, loose joints, hearing and vision problems, and obesity.

Kikuube District Chairperson Peter Banura commended RDSAC for the initiative and pledged the district’s support for the campaign.